"The truth is rarely pure and never simple" (Oscar Wilde). -- This blog reflects my personal life with but not defined by MPS I- reflecting the peaks and valleys of this dx., and my life despite a rare disease while rarely falling within the standard definition of this disorder.
Thursday, July 25, 2013
Erica and her Mom are impatiently awaiting the doctors to take out her breathing tube. She is asking if I updated her blog and facebook. I told her I did. I also told her she has a lot to read when she wakes up. She is spending a lot of time sleeping -- the doctors said when they take out her breathing tube she will start sitting up and "things wills start happening". Well, her Mom is READY for her to sit up and get that breathing tube OUT. More tomorrow.
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