"The truth is rarely pure and never simple" (Oscar Wilde). -- This blog reflects my personal life with but not defined by MPS I- reflecting the peaks and valleys of this dx., and my life despite a rare disease while rarely falling within the standard definition of this disorder.
Wednesday, September 4, 2013
It is still Mom updating tonight. Erica had a fairly uncomfortable day today. Breathing tube out but everything else still on and in. They are changing her pain meds tonight so hopefully she will get some rest. She did get to drink a little soda this afternoon and I think it tasted pretty good! One day at a time and hopefully -- moving forward all the way this time!
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