Ive had quite painful sciatic nerve type pain for the past 6 or so weeks which makes sitting for any period of time really uncomfortable - my favorite place to sit and do stuff here on my laptop is on my bed (vs my desk which is usually covered in papers and documents, records, etc) I love just sitting leaning back against pillows (upright) legs straight out in front of me or curled up but definitely doing less of that these days. Ive been back in PT regardless for the past 2 weeks so am hoping this will help some in addition to the stretching ive already always done everyday. We will see - im sure it will (whatever it really is!) will heal and go away as it always seems to.
I have been feeling really good for the past 3 days - a little tired on and off sun and today (this was written on mon) but likely because I got up early with Zander on sun and had him from early Sat afternoon, overnight all through sunday when we had a birthday party with my siblings and a few relatives at my parents house. I then fell asleep around midnight Sun night and was back up to head to ERT early mon.. Really the only symptom that remains is vision though which is not perfect but so happy to not have all the other symptoms, I hope it lasts!! Most of my siblings came to my parens house as did Zander and I sun and a few other family members for my twin brothers and my b-day (which is actually today) so it was definitely a busy day/busy weekend!
I found this picture of the same programmer (magnet) device used to re-program my current VP shunt valve.