As far as what did we decide at the appt? Nothing earth shattering, they'll do a 2nd post 3rd OHS Echo around 3-4mo I believe Nancy (NP) said (the 1st was a wk after surgery, this showed the Moderate stenosis in the new valve. A TEE which is a Echo done internally (in a sense) via a probe down the throat or on means like that, not entirely sure how it works when intubation yet) but that Trans Echo looked perfect. Very good. The 1 wk Echo post surgery showed the moderate stenosis but my
As far as how to try and get on top of it he seemed to admit some uncertainty but suggested we try a beta blocker again (oh joy) again in addition to the numerous other meds we have im place given this overly fast HR could be related to the MVR and perhaps (but we really have no way to know) will improve in time. He seems to feel that is less likely but also seems to be hanging on to a bit of hope for that.
I'll f/up with Dr.E and with my Heart Rhythm dr. in 1mo, in which i'll see Dr.Kovach 1st, we'll talk everything over and then i'll meet with both Dr.Kovach and Dr.Earing after. We'll try to formulate a better plan I guess. If lucky this med will work, I wont have side effects and god willing (please????) i'll get off some of these freaking meds at some pt.
Dr.Earing brought up how he doesn't see signs of Heart Failure, which is a good thing but I forgot to ask with all the ridiculous meds I take and the 2 to get fluid off wouldn't those kind of put HF under control? I don't know and will try to remember to ask next mo. I wonder that I guess bc of how I feel (some points better than others).
I keep telling myself, reminding myself and hoping I/my Team can get me back to the way I felt that 1st wk of the OHS. As I mentioned above I literally in that 1st wk or 2 said to numerous people I felt so good, I felt "high on happy" because I hadn't felt that good from a heart stand pt in such a very long time.
*The same really for the headaches/pressure, I pray I/my Team can get back to how good I felt (wasn't perfect but was so so close to perfect, as close we'd had in a long while) with the 2 shunts. This OHS was needed, yet it is hard how good the results where at 1st and how different it has been since that 1st week to 1.5wks. Equally hard how good the shunts finally where, not perfect but sooooo much better then the surgery and just like 3 steps backward again. I feel like this never ends!
Neurosurgery Appt / F/up -
Some of the things I will miss most once she is really gone:
If I was in/going to the ER I could let Dr Bragg know and she'd coord it all. I hope this will be the case w whoever the new doc becomes ( in new Teams case, whoever I pick let their Team know ).
Above all I hope whoever I/we chose will realize I don't want to need them but since I do can we make a Team and work together well. Can they just respect I don't want them but do or will need them so can we figure this out together and can they be persistent (not give up) as Dr.Bragg has always been... THIS is the part that most scares me actually!
After my Appt in Madison Weds w/Dr.Bragg, I felt good from a Headache standpt (I slept pretty good Weds night to, yay!) I stopped at Hobby Lobby and HyVee since I was feeling good.
At Hobby Lobby I found a few new crafts for Sun School which is always fun, lol. I think it's quite possible I enjoy finding different craft ideas to much =) - I needed a little cheering up though in general (no real reason). :) Afterwards due to it being Lent I went to the late afternoon Service at Church which Lent is my favorite time of the Church Season no matter (reminder there's better to come thanks to Christ giving his life for our/my sins; his selfess act) and ultimate Resurrection - a new beginning I guess really.
Anyways it is nice (atleast for me) to be able to be in Church during that midwk Service these past few wks and be reminded as hard as things have felt lately, not feeling the best there is a so much better place one day.
The reminder to me during Lent of what was given for me despite my many sins is a reminder there is a place where pain just won't be, where I'll feel better, free of feeling these heart, shunt and any other issues one day. It's a reminder I am grateful for personally! I know it's not right for everyone but I am grateful for my faith.
I truly believe everyone should have their own rights, beliefs and practices but I am grateful for what I have as it helps.
If you believe in prayer please say one we can figure this shunt and heart stuff out if it be God's will.
Thanks for stopping by,