Well the wait is over, I heard from Dr.Bragg this morning she sent an email with a update on what she learned from talking to her colleague (a Neurologist) who is the one that helps w their complex shunt pts. His recommendations where two-fold with his one thought she said being our on-going repeated shunt issues and trying to take a different approach (see below for part of her email though not the complete note) + how he feels the cardiac issues may be affecting our shunt issues.
Please dear Lord if it is thy will allow Dr.Bragg to come up with some plan in which we might try to treat these headaches either differently or sooner than before any heart surgery. =/ I can really understand her being uncertain about how these valve issues affect the use of anesthesia and her surgeries and so completely cant fault her on that but I still do pray we can come up with something and much sooner. This is hard, so really hard. The worst part I think is just that there are many things i'd like to be doing or more things id like to be gettng done most days and I just dont all of the time. =/
I pray for God o help guide my drs in making the best choices as we cont to try to figure some pretty complex issues out. In some ways I am happy to be done w all that was my 20's, like entering a new phase almost. :)