We do have the same Cardiac Anesthesia dr., the 2nd EP Dr and my Heart Rhythm dr. with arguably the Anesthesia part being most important and Heart Rhythm dr being familiar with my issues now so should be ok.
I hadnt thought of this to ask last wk (emailed earlier this wk) but it is scheduled now as just an over night stay - as long as all goes well. As a friend said "a sleep over", lol.
These (direct) tests and procedure are being done to directly measure pressures in heart and between heart and lungs as well as to visualize the mechanical valves.
Given things are up in the air between the plan we did have in place we're looking at other options at the time being so we'll see?
Her seeming concern was/is the changes in the last quick brain MRI done (done a few wks ago, last time I saw Dr.Bragg) in fact shunt related (what else would it be?
That MRI report noted change in ventricle size from prior imaging which I knew from Dr.Bragg
A new MRI is being done in a few wks, my concern is ventricles rarely enlarge as it is so seems unlikely they'll enlarge even more but there's definitely something going on given symptoms keep changing.
My PCP wondered if given symptoms if that ventricle size change especially given my ventricles almost neve change size (rare occasion ) if that wasn't pointing to a shunt issue.
I talked to Dr.Bragg re this and my PCP wondered if a Neurology consult to could perhaps help in this interim few mo's (till new Nrsgn comes Aug./ Sept.).
Dr.Bragg has said when the new Neurosurgeon comes later in summer she'll talk to him about my case so hopefully that can help and most of all just keep praying when the new Peds Nrsgn comes in late summer he is open to looking more closely in some way at the shunts.
I truly think and have thought it's the LP Shunt given symptoms there replicate symptoms we've had in the past when we weren't sure it was in fact a shunt issue but then would have to do something directly with the shunts and indeed would find 1 of the shunts, usually the spine one wasn't working well.
Coumadin (blood thinner) wise my Cardiologist brought up last wk, almost as a passing remark/question did I think I was resistance to Coumadin (I don't) and we also talked about (both of my Cardiac drs - Cardiology and Heart Rhythm dr.) brought up the heart rate control and it's resistance to cardiac meds. This is the reason we're going ahead w the procedure (ablation) though my Heart Rhythm dr did say he would stop the Ivabradine for a short while after the study to see how HR has reacted. If it helps but not enough may still have to use Ivabradine after but will depend. This particular study is one that can either not work effectively enough or cause to slow of heart rate (thus need for pacemaker) or work very well and do exactly as we hope.
God knows his plan, right?
Thanks for stopping by,