After the Neuro Appt i'll call my Infusion center (a few blocks away so pretty close to UW Hospital), my primary infusion Nurse was fine accessing my Port for Tues (so much easier going in with my Port accessed then trying to get the Pre-op Team or Access Team down to do it! the morning of surgery).
Otherwise a few wks ago, actually while in CA yet I had tripped/fallen (I am not the most graceful) while going up the shuttle steps to go to the Airport and bruised my R knee though at the time was uncomfortable but certainly not the worst thing I've done. That for whatever reason over the 3 or 4 wks since has only seemed to get more sore and uncomfortable and the bruising/slight swelling hasn't gone away, This has has made walking a slight annoyance!
I finally went to the local Urgent care yesterday as my Primary dr is out on maternity leave and no one else in her office could see me till next wk (which would have been fine except the surgery is Tues and the appt they offered was Thurs).
Per Urgent Care doc and Xrays he thinks it's likely just bruising, try to rest ( easier said than done!) and get it rechecked in a few days if it's still so uncomfortable. They wrapped it in an ace banadage and said to keep that on other than showering so hopefully will improve in 3-5days!?!?! Would be nice!
Neuro Opthalmology
This past wk I seen Neuro-Opthalmology (having to do with the eyes and brain) which I suppose shouldn't really be that big a surprise but the visual field testing was pretty bad, some pretty significant issues with it. I hate these tests almost like I hate no other test (that's saying something!!!)! Mostly I hate the visual field test b/c of how you have to sit, leaning kind of fwd, neck and upper back leaning fwd (super hard, I don't have normal motion in my neck and my low to mid-back is fiercely unconfortable in almost any position these days due to the LP shunt. which is the shunt being looked at next wk).
Anyways so I apparently bombed this visual field test (my Opthalmol. showed a copy of the test vs the last ones I did a few yrs ago (I am supposed to see this dr. yearly but kept cancelling the past few yrs); even I could see the stark difference. It was pretty obvious.
Given we are having shunt issues I asked my Eye doc if that couldn't be the cause for the changes and so she agreed and instead of moving on to other tests to look more in to this that she'd first want to do she asked me to let her know in a month or so when I am healed from next wks surgery and she'll want to repeat the test before deciding if we'll need to do further investigating (testing) in to this.
Hopefully it is in fact an issue that heals after the shunt issues get fixed. I talked to a few of my docs and they seem to think with time it could very well straighten out. Not high on my list of things to be to concerned about.
Dr.Bragg (my former Nrsgn, though she stays involved) just said I needed to mention it to Dr.Iskandar and when I emailed him he said he would look at the results. I suppose maybe bc we are only looking at the 1 shunt and say that is working and we aren't planning to look at the VPL Shunt (plan is to just explore the LP Shunt and spine on Tues) maybe there is an issue with the VPL causing these vision changes? I'm not sure and really don't know. Maybe just pressure in general can cause the changes. Either way isn't affecting anything much at the moment that I can tell anyways.
Pre-op (for surgery) Appt:
Separate from this I had pre-op last wk which was with a Provider I'd never met (mine is out on maternity leave through next month, I've always known she's great but there are so many small ways I have missed her in regards to my care these past couple months!) - anyways the Internal Med dr. I saw seemed to have familiarized herself with my case and the whole appt went really smooth. I had made this for an hour and a 1/2 time frame before my Infusion (made for a long day, was in another part of Madison) but went well and quick! My Neuro-Endocrine dr has sent their pre/post surgery stress dosing recommendations for surgery and Cardiology's lonox/blood thinner recommendations are also on file so wasn't to hard.
Cardiology did their Echo last wk as well, as well as the Lovenox (injection blood thinner) labs and I've not heard anything re the Echo result but did see the result on MyChart and not unexpectedly (given wasn't more than 4wks before that or so we'd just done this test!) results looked pretty well the same.
The mechanical aortic valve just mild leaking or narrowing and the mechanical mitral valve mild-to-moderate narrowing. The lovenox level was within normal (range it should be for this med) level as well.
Otherwise I feel like i'm forgetting something but I really am not sure what.
Will update when there is something to update.
Thanks for stopping by,
Erica
No comments:
Post a Comment