My Neurosurgeon just stopped by today and said although we where shooting for getting released today she doesnt want to guarantee it yet and we should just wait and see how it goes. She spoke with urology yesterday and they said that they dont typically start medications until 2 weeks after a nerve injury so that it can give plenty of time for the body to try and heal itself re loss of sensation and inability to just go and holding after having gone. She is working with them to set up consults and testing likely when I am out-pt but she and the residents did say they may do some of it today to. She talked again definitively about having the nurses teach me to straight cath bc of the importance of not having free standing urine left in the bladder after having gone to the bathroom - and that this to will likely be a short term problem but we just cant say how long =/ - she just doesnt want anything to occur in this period of bladder not quite working right and when it is back to a more normal. As far as PT/OT she wants them to really focus on the whole ADL thing bathing/showering (she did say id have to keep the incisions covered), stairs, dressing and all of the other little things that a perosn takes for granted and might not think of. As well she wants to get this coordinated for at home re these therapies and assistance devices. Feeling a little daunted by it all but I know day to day is the best way to look at it.
As for ERT I talked to the genetics clinic about trying to get it done a later day this week, we will see.
Will update when I know more later,